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Moebius Syndrome Awareness Day

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Welcome to the official Moebius Syndrome Awareness Day website hosted by the Many Faces of Moebius Syndrome.

Moebius Syndrome Awareness Day is an event created by the Many Faces of Moebius Syndrome in 2011. It is held annually on the 24th of January, the birthdate of Professor Paul Julius Moebius, the doctor who first reported the disorder in 1888.

 

Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Moebius Syndrome are born with facial paralysis and can't close their eyes or show facial expressions. Limb and chest wall abnormalities often occur with the syndrome. Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders and weak upper body strength may also be present.

 

It is estimated that there are only between 10,000 to 25,000 cases of Moebius syndrome worldwide. 

 

In past year's Moebius Syndrome Awareness Day has been a resounding success and saw participation from every continent on the planet –the main-focus is to create awareness. MSAD events have taken place around the globe in homes, schools, churches, workplaces, auditoriums, and outdoors. Dozens of news stories have hit the headlines, wound up on the airwaves, and blasted off into cyberspace via various print, TV, radio and social media news publications.

To learn more about Moebius Syndrome Awareness and Moebius Syndrome please visit our home website.

Please join our Global Moebius Syndrome community and our Global Partners and take part in one of the many gatherings and events taking place in January, 2022. We encourage you to proudly wear purple and do some of your own research to educate yourself and others about Moebius Syndrome. 

 

If you would like to host a Moebius Syndrome Awareness Day event or become a volunteer please email us.

 

We appreciate your support and look forward to MSAD 2022 being the biggest one ever.

-Team MFOMS