October 18, 1951 - September 11, 2016
I was born on October 18, 1951 with Moebius Syndrome. Back then
doctors never ever heard of it.
Most of my young life was spent in and out of hospitals. Part of my syndrome includes club feet. I wasn’t able to walk until I was three years old.
During one of my visits doctors poked my face with needles to see if I had feeling. I definitely had feeling. Just not muscles.
My primary physician at the time suggested to my mother that I go to a regular public school. It was hard. The kids teased me so much. You know, if you are not perfect in every way they will tease
you and make fun of you.
I did graduate from high school in 1970. I took a few college classes. I wanted to be an Occupational Therapist. However some of
the classes I had to take were way over my head. Now when I look back I realize I could have gotten a tutor to help me.
It was very hard for me to find a job. I couldn’t work at the
local stores because I can’t stand on my feet for any length of time.
My very first job was in 1971. I did general office work for an idiot. Fortunately the company moved out of state and I didn’t go with them
Between 1971 and 1995 I had several nice jobs. The jobs that I liked I would still be there if the companies didn’t close.
My experiences finding a job when the company shut down or I got laid off were just horrible. I remember going to one agency that helps people with disabilities find jobs and they were only interested in making their “quota.” They sent me on one interview that involved TWO hours of traveling to work using public transportation one way.
I went to several business schools. I was always one of the top people in my class.
In 1995 my father passed away and I had a breakdown. I am fine now but I used my Moebius Syndrome to get on disability. I am not really proud of it but with the economy the way it is, it is easier for me to stay home and take care of my 91 year old mother.