Moebius Syndrome Awareness Day

Because of the Covid pandemic Moebius Syndrome Awareness Day 2022 probably wont be a normal awareness day with in person events going on around the world, but that doesn't mean we can't make it an awe inspiring day to educate the world about Moebius syndrome and those of us living with it.

Here are a few ideas on how we can spread awareness throughout the month of January.


One awesome way to spread Moebius syndrome awareness is by contacting your local media outlets and sharing the official MSAD 2022 Press Release. Ask them to do a story on you and MSAD. Click here to read an article which gives suggestions on how to approach the media.


Looking for something you can take to school to share with your teacher so they can learn more about Moebius syndrome? Check out "Letter to the Teacher" by Sandy Goodwick.


One way to spread Moebius syndrome awareness is by sharing our MSAD Heroes on your social media pages. Let's show the world how awesome our Heroes are! We will post one or two new Heroes a day on our MFOMS social media pages for you to share.

If you would like to nominate someone with Moebius Syndrome to be a MSAD Hero, please email us their photo along with a paragraph explaining why they are your hero to - 2022-01-02T085252.792.png

Would you like to host your own MSAD virtual celebration? Email us at and we will help you make it happen.

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A quick way to spread awareness is by using the official Moebius Syndrome Awareness Day logo as your Facebook, Instagram, or Twitter profile picture. (Right click and hit save as to download photo)

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One great way to help the Many Faces of Moebius Syndrome spread awareness and give back to the Global Moebius Syndrome community all year long is by creating Facebook Fundraiser or donating to an existing one. To create your own MFOMS Fundraiser click here. To donate to Bethany's Fundraiser click here.


If your looking for some Moebius Syndrome Awareness Day images to share on your social media pages check out our collection here.